Vener Family
Vener Family's Fundraiser

Vener Family Yard Sale/Fundraiser

We can fund Nemaline Myopathy research together

$1,010 towards $1,000

Join us in supporting real change. Let's support good in the world and make a difference. Help us change the lives of those living with Nemaline Myopathy through A Foundation Building Strength

Nemaline Myopathy (NM) is a rare neuromuscular disease that causes weakness in the muscles. NM is considered one of the most deadly childhood diseases where in severe cases, there is up to a 66% mortality rate before the age of 2. Many people with NM Experience muscle weakness and have difficulty chewing, swallowing, speaking, breathing, coughing, and walking. Daily tasks can be exhausting and simple colds can quickly turn into a severe illness.

There are currently no treatments or cures for NM. Our daughter, Marlaina, was born with NM. She is a 4th grade student at Shaull Elementary and is determined to raise as much money as she can for A Foundation Building Strength (AFBS) because she understands the importance of making a difference in the lives of all her friends who are affected by NM. Research is what helps us hold on to Hope. AFBS remains the only non-profit worldwide dedicated to finding treatments for NM. Please join Marlaina and our family in making a difference in the lives of people affected with NM.

Just a small donation will go a long way to helping us meet our goal for A Foundation Building Strength.

Thank You! From the Vener Family