Savannah Bosworth
Savannah Bosworth's Fundraiser

We can fund treatments for Nemaline Myopathy for Hudson and people just like hudson

Join me and help make a difference in Hudson’s life and others fighting this battle

$1,740 towards $10,000

Our beautiful little burrito, Hudson James Bosworth has been diagnosed with Nemaline Myopathy ACTA1. He was born very floppy, couldn’t eat, suck or cry. It took us months to find this diagnosis but now that we have it, it’s time to make a difference.

Hudson isn’t like other kids when it comes to moving, eating and breathing.

Hudson is g tube dependent because his Epiglottis doesn’t move.

Hudson now has a trach from being in respiratory failure from the common cold June 2019.

A common cold can be fatal for kids like Hudson. We need to find a cure!!!

He doesn’t move much due to the skeletal muscles being effected but he is working his booty off everyday to get to where he needs to be! He is such a warrior!

People with Nemaline Myopathy don’t take full breaths so his lungs aren’t being used as they should. Thankfully to modern medicine we are finding ways to help utilize his lungs to full capacity so that his lungs stay healthy and he continues to thrive.

Imagine your child having a chance at a typical life but the only thing stopping that is funding!

Please donate even $1 to help us find treatments to help these kids live long healthy lives.

They deserve it more than anything.

Thank you!

Love, The Bosworth’s.

Just a small donation will go a long way to helping me meet my goal for A Foundation Building Strength