I donated in support of this campaign.
On Sunday, March 15, I will be taking part in a cycling event to raise money for Nemaline Myopathy, a rare neuromuscular disorder which makes basic life tasks such as breathing, coughing, sitting and walking extremely difficult.
Vance's friend, Liv was seven months old when she was diagnosed with Nemaline Myopathy. Vance met Liv in kindergarten and they instantly became friends. Liv moved schools at the start of this year (second grade) so they do not get to see each other as much, but still get together for playdates whenever they can. They have fun together swimming, building Lego, playing games, and being loud 🙂.
Research for treatment remains our only hope of providing Liv with a longer and healthier life.
Please consider donating to Nemaline Myopathy research to help move us move closer to treatment for Liv! Just a small donation will go a long way to helping me meet my goal at the LoveLiv Cycle for Strength fundraiser.
Thank you so much!